{"id":957,"date":"2026-07-07T18:33:02","date_gmt":"2026-07-07T16:33:02","guid":{"rendered":"https:\/\/carepath-ihi.eu\/?p=957"},"modified":"2026-07-08T12:03:22","modified_gmt":"2026-07-08T10:03:22","slug":"the-patients-voice-in-carepath","status":"publish","type":"post","link":"http:\/\/carepath-ihi.eu\/de\/the-patients-voice-in-carepath\/","title":{"rendered":"Die Stimme des Patienten im CarePath"},"content":{"rendered":"<h2 class=\"wp-block-heading\">Abgleich der Karte mit dem Gel\u00e4nde nach ECO 2026<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Nach der ECO 2026 reflektiert CarePath-Partnerin Mari-Mette Graff, die die European Coalition for People Living with Obesity (ECPO) vertritt, die Kongressgespr\u00e4che \u00fcber Fettleibigkeit, integrierte Versorgung und Patientenbeteiligung \u2013 und was diese f\u00fcr das CarePath-Projekt auf seinem Weg in die Pilotphase bedeuten.<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Die Art und Weise, wie wir komplexe Gesundheitszust\u00e4nde verstehen, diskutieren und behandeln, ver\u00e4ndert sich.<\/strong> Der Europ\u00e4ische Adipositas-Kongress (#ECO2026) in Istanbul ist soeben zu Ende gegangen. Die Diskussionen zwischen Fachkr\u00e4ften im Gesundheitswesen, Forschern und Patientenorganisationen lie\u00dfen keinen Zweifel daran: Die Gesundheitssysteme m\u00fcssen aufh\u00f6ren, chronische Erkrankungen fragmentiert und St\u00fcck f\u00fcr St\u00fcck zu behandeln.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg?strip=all\" alt=\"A woman presents the EU Project CarePath at the 33rd European Congress on Obesity; an empty panel with five chairs and microphones is in the foreground.\" class=\"wp-image-969\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg 1024w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-980x653.jpeg 980w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-480x320.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Diese Verlagerung war ein zentraler Schwerpunkt bei <strong>ECPOs patientenzentriertes Symposium \u201cInput to Impact \u2013 Patienten als Risikomanager, nicht nur als Geschichtenerz\u00e4hler\u201d<\/strong>. Als Teil des Teams der Europ\u00e4ischen Koalition f\u00fcr Menschen mit Adipositas (ECPO), die stolz die Rolle als <strong>Patientenleitung<\/strong> f\u00fcr das European CarePath-Projekt nutzten wir diese wirkungsvolle Sitzung, um hervorzuheben, wie CarePath diesen \u00dcbergang aktiv angeht.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ich habe Istanbul mit einem tiefen Gef\u00fchl sowohl von Optimismus als auch von dringender Ungeduld verlassen. Es ist h\u00f6chste Zeit, dass wir Br\u00fccken schlagen zwischen Spitzenforschung in der Medizin und dem tats\u00e4chlichen t\u00e4glichen Leben der Menschen, die davon betroffen sind. In meiner Rolle als Vertreterin der ECPO im Konsortium setze ich mich daf\u00fcr ein, dass diese \u00dcbersetzung stattfindet.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Politische Besorgnis und allt\u00e4gliche Stigmatisierung<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Durch meine Arbeit als Vorsitzende der Norwegischen Vereinigung f\u00fcr Menschen mit Adipositas (LFO) und mein Engagement bei der ECPO erlebe ich t\u00e4glich, wie Menschen mit Adipositas und damit verbundenen kardiometabolischen Erkrankungen von der Gesellschaft behandelt werden. Wir beobachten eine ohrenbet\u00e4ubende politische Stille und Zur\u00fcckhaltung angesichts einer der gr\u00f6\u00dften Herausforderungen f\u00fcr die \u00f6ffentliche Gesundheit unserer Zeit. Allzu oft werden komplexe biologische Zust\u00e4nde auf vereinfachende Narrative \u00fcber \u201cPr\u00e4vention\u201d und individuelle Lebensstilentscheidungen reduziert.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dieser tiefen Ungerechtigkeit, der allt\u00e4glichen Stigmatisierung und den fragmentierten Behandlungswegen stellen wir uns nun direkt. Wie wir auf unserem Symposium betonten, verf\u00fcgen Patienten \u00fcber entscheidendes Fachwissen, das Risiken in Gesundheitssystemen aktiv managen muss, anstatt nur als emotionale Anekdoten zu dienen.<\/p>\n\n\n\n<div class=\"wp-block-group is-horizontal is-nowrap is-layout-flex wp-container-core-group-is-layout-68a6192b wp-block-group-is-layout-flex\">\n<p class=\"wp-block-paragraph\"><em>Das Leben mit einer chronischen Erkrankung ist weit mehr als nur die Einnahme von Medikamenten \u2013 es ist eine t\u00e4gliche, menschliche Erfahrung, die tiefes Verst\u00e4ndnis, zug\u00e4ngliche Werkzeuge und die Garantie erfordert, dass die Stimme des Patienten auch wirklich geh\u00f6rt wird.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, ,<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"510\" height=\"510\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg?strip=all\" alt=\"A woman with straight black hair, glasses, and bright pink lipstick smiles in a corridor. She is wearing a floral-patterned top and green earrings.\" class=\"wp-image-971\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg 510w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff--480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 510px, 100vw\" \/><\/figure>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Drei wichtige Lektionen aus Istanbul<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Die Erkenntnisse aus ECO 2026 und der Dialog, der unsere \u00abInput to Impact\u00bb-Sitzung vorantreibt, unterstreichen drei zentrale Prinzipien, die den Weg f\u00fcr das europ\u00e4ische Gesundheitswesen definieren:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Eine komplexe biologische Realit\u00e4t:<\/strong> Fettleibigkeit wird vollst\u00e4ndig als chronische, rezidivierende Krankheit anerkannt, die langfristig medizinische und ganzheitliche Unterst\u00fctzung \u00fcber die Zeit erfordert. Wir m\u00fcssen uns von individueller Schuld permanent zu strukturellen L\u00f6sungen bewegen.<\/li>\n\n\n\n<li><strong>Starke Gesundheitszusammenh\u00e4nge<\/strong>Stoffwechsel- und Herz-Kreislauf-Gesundheit sind tief miteinander verbunden. Fettleibigkeit tritt selten isoliert auf; sie ist eng mit der Entwicklung von Typ-2-Diabetes und Herz-Kreislauf-Erkrankungen verkn\u00fcpft. Dies erfordert einheitliche Behandlungspfade, nicht isolierte Interventionen.<\/li>\n\n\n\n<li><strong>Kontinuit\u00e4t der Versorgung<\/strong>: Zwar bieten moderne medizinische Behandlungsmethoden bahnbrechende neue M\u00f6glichkeiten, doch klinische Ma\u00dfnahmen allein k\u00f6nnen nicht alle Probleme l\u00f6sen. Der dringende Bedarf besteht nun darin, nachhaltige Versorgungswege und unterst\u00fctzende Rahmenbedingungen zu schaffen, die eine langfristige Kontinuit\u00e4t der Versorgung im Alltag erm\u00f6glichen.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">CarePath: Die Karte am Gel\u00e4nde ausrichten<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">In der akademischen und medizinischen Forschung werden oft sch\u00f6ne Karten gezeichnet. Aber f\u00fcr mich geht es bei Projektarbeit nicht um theoretische Modelle; es geht darum, das reale Terrain, in dem sich Patienten bewegen, direkt in Forschungs- und Gesundheitssysteme einzubringen. <strong>Die Karte muss mit dem Gel\u00e4nde \u00fcbereinstimmen<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Das ist genau die L\u00fccke, die CarePath schlie\u00dfen will. Gegr\u00fcndet von der <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Innovative Gesundheitsinitiative (IHI)<\/a>, Unser Konsortium entwickelt ein flexibles, personenzentriertes, digitales \u201cPlug-and-Play\u201d-Toolkit. Das Projekt zielt darauf ab, Menschen zu bef\u00e4higen, ihren Gesundheitsverlauf nach eigenen Vorstellungen zu gestalten.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Wir treten nun in die n\u00e4chste Phase des Projekts ein, in der Pilotstudien in ganz Europa durchgef\u00fchrt werden. Die Erfahrungen, das Fachwissen und die unsch\u00e4tzbaren Erkenntnisse, die von Patientenorganisationen in Istanbul geteilt und w\u00e4hrend unseres eigenen ECPO-Symposiums vertieft wurden, bilden das Fundament dieser Testphase.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Gesundheit bedeutet so viel mehr als nur Gewicht. Als Patientensprecherin f\u00fcr ECPO werde ich mich weiterhin f\u00fcr einen evidenzbasierten Ansatz einsetzen, bei dem gelebte Erfahrung als echte Expertise anerkannt wird \u2013 so, dass Patienten als aktive Risikomanager die Werkzeuge, die wir entwickeln, vorantreiben.<\/p>","protected":false},"excerpt":{"rendered":"<p>Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. The [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":969,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"<!-- wp:heading -->\n<h2 class=\"wp-block-heading\">Aligning the Map with the Terrain After ECO 2026<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><em>Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO, reflects on the congress discussions around obesity, integrated care and patient engagement - and what they mean for the CarePath project as it moves towards its pilot phase.<\/em><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>The way we understand, discuss, and treat complex health conditions is shifting.<\/strong> The European Congress on Obesity (#ECO2026) in Istanbul has just concluded. Discussions among healthcare professionals, researchers, and patient organizations left no room for doubt: healthcare systems must stop treating chronic conditions in a fragmented, piecemeal manner.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This shift was a core focus at <strong>ECPO\u2019s patient-centred symposium, \"Input to Impact \u2013 Patients as Risk Managers, not just storytellers\"<\/strong>. As part of the team at the European Coalition for People Living with Obesity (ECPO), which proudly holds the role of <strong>Patient Lead<\/strong> for the European CarePath project, we used this powerful session to highlight how CarePath actively addresses this transition.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I left Istanbul with a deep sense of both optimism and urgent impatience. It is high time we build bridges between top-tier medical research and the actual daily lives of the people it affects. In my role representing ECPO within the consortium, I am dedicated to ensuring this translation happens.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Political Apprehension and Everyday Stigma<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Through my work as leader of the Norwegian Association for People Living with Obesity (LFO) and my involvement with ECPO, I witness daily how individuals with obesity and related cardiometabolic conditions are met by society. We see a deafening political silence and apprehension surrounding one of the greatest public health challenges of our time. All too often, complex biological conditions are reduced to simplistic narratives about \"prevention\" and individual lifestyle choices.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It is this deep injustice, the everyday stigma, and the fragmented patient pathways that we are now directly confronting. As we emphasized during our symposium, patients possess critical expertise that must actively manage risks in healthcare systems, rather than just serving as emotional anecdotes.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><em>Living with a chronic condition is about far more than medication \u2013 it is a daily, human experience that requires deep understanding, accessible tools, and a guarantee that the patient\u2019s voice is actually heard.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, representing ECPO as Patient Lead in CarePath<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Three Key Lessons From Istanbul<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The insights from ECO 2026 and the dialogue driving our \u00abInput to Impact\u00bb session underscore three vital principles that define the path forward for European healthcare:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li><strong>A complex biological reality:<\/strong> Obesity is fully recognized as a chronic, relapsing disease that requires long-term, medical, and holistic support over time. We must move permanently away from individual blame toward structural solutions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Strong health interconnections<\/strong>: Metabolic and cardiovascular health are deeply linked. Obesity rarely occurs in isolation; it is closely intertwined with the development of type 2 diabetes and cardiovascular disease. This demands unified healthcare pathways, not isolated interventions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Continuity of care<\/strong>: While modern medical treatments offer ground-breaking new opportunities, clinical interventions alone cannot solve everything. The pressing need forward is creating sustainable healthcare pathways and supportive environments that enable long-term continuity of care in daily life.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">CarePath: Aligning the Map with the Terrain<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In academia and medical research, beautiful maps are often drawn. But for me, project work is not about theoretical models; it is about bringing the real terrain that patients navigate directly into research and healthcare systems. <strong>The map must align with the terrain<\/strong>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This is exactly the gap CarePath aims to bridge. Foundedby the <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Innovative Health Initiative (IHI)<\/a>, our consortium is developing a flexible, person-centered, digital \"plug-and-play\" toolkit. The project aims to empower individuals to navigate their health journey on their own terms.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>We are now moving into the next phase of the project, where pilot studies will be rolled out across Europe. The experiences, expertise, and invaluable insights shared by patient organizations in Istanbul\u2014and cemented during our own ECPO symposium\u2014will form the very foundation of this testing phase.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Health is about so much more than weight. Representing ECPO as the Patient Lead, I will continue to fight for an evidence-based approach where lived experience is treated as true expertise\u2014ensuring patients act as active risk managers driving the tools we create.<\/p>\n<!-- \/wp:paragraph -->","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-957","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-carepath"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carepath-ihi.eu\/de\/the-patients-voice-in-carepath\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath\" \/>\n<meta property=\"og:description\" content=\"Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. 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