{"id":957,"date":"2026-07-07T18:33:02","date_gmt":"2026-07-07T16:33:02","guid":{"rendered":"https:\/\/carepath-ihi.eu\/?p=957"},"modified":"2026-07-08T12:03:22","modified_gmt":"2026-07-08T10:03:22","slug":"the-patients-voice-in-carepath","status":"publish","type":"post","link":"http:\/\/carepath-ihi.eu\/pl\/the-patients-voice-in-carepath\/","title":{"rendered":"G\u0142os Pacjenta w CarePath"},"content":{"rendered":"<h2 class=\"wp-block-heading\">Ujednolicenie mapy z terenem po ECO 2026<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Po ECO 2026, Mari-Mette Graff, partnerka CarePath reprezentuj\u0105ca Europejsk\u0105 Koalicj\u0119 Os\u00f3b z Oty\u0142o\u015bci\u0105 (ECPO), dzieli si\u0119 refleksjami na temat dyskusji kongresowych dotycz\u0105cych oty\u0142o\u015bci, zintegrowanej opieki i zaanga\u017cowania pacjent\u00f3w \u2013 oraz ich znaczenia dla projektu CarePath w miar\u0119 jego zbli\u017cania si\u0119 do fazy pilota\u017cowej.<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Spos\u00f3b, w jaki rozumiemy, dyskutujemy i leczymy z\u0142o\u017cone stany zdrowotne, ulega zmianom.<\/strong> W\u0142a\u015bnie zako\u0144czy\u0142 si\u0119 Europejski Kongres po\u015bwi\u0119cony Oty\u0142o\u015bci (#ECO2026) w Stambule. Dyskusje mi\u0119dzy pracownikami s\u0142u\u017cby zdrowia, naukowcami i organizacjami pacjent\u00f3w nie pozostawi\u0142y \u017cadnych w\u0105tpliwo\u015bci: systemy opieki zdrowotnej musz\u0105 zaprzesta\u0107 fragmentarycznego i dora\u017anego leczenia chor\u00f3b przewlek\u0142ych.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg?strip=all\" alt=\"A woman presents the EU Project CarePath at the 33rd European Congress on Obesity; an empty panel with five chairs and microphones is in the foreground.\" class=\"wp-image-969\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg 1024w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-980x653.jpeg 980w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-480x320.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Ta zmiana by\u0142a kluczowym celem w <strong>Sympozjum ECPO skoncentrowane na pacjencie \u201cOd wk\u0142adu do wp\u0142ywu \u2013 pacjenci jako zarz\u0105dzaj\u0105cy ryzykiem, nie tylko narratorzy\u201d<\/strong>. Jako cz\u0142onek zespo\u0142u Europejskiej Koalicji Os\u00f3b z Oty\u0142o\u015bci\u0105 (ECPO), kt\u00f3ra z dum\u0105 pe\u0142ni rol\u0119 <strong>Osoba Nadzoruj\u0105ca Pacjenta<\/strong> dla projektu European CarePath u\u017cyli\u015bmy tej pot\u0119\u017cnej sesji, aby podkre\u015bli\u0107, w jaki spos\u00f3b CarePath aktywnie zajmuje si\u0119 tym przej\u015bciem.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Opu\u015bci\u0142em Stambu\u0142 z poczuciem g\u0142\u0119bokiego optymizmu, ale i pal\u0105cej niecierpliwo\u015bci. Najwy\u017cszy czas, aby\u015bmy budowali mosty mi\u0119dzy najlepszymi badaniami medycznymi a codziennym \u017cyciem ludzi, kt\u00f3rych one dotycz\u0105. W mojej roli przedstawiciela ECPO w konsorcjum, jestem zaanga\u017cowany w to, aby ten przek\u0142ad si\u0119 dokona\u0142.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Polityczne obawy i codzienne pi\u0119tno<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Dzi\u0119ki mojej pracy jako lider norweskiego Stowarzyszenia Os\u00f3b z Oty\u0142o\u015bci\u0105 (LFO) oraz mojemu zaanga\u017cowaniu w ECPO, codziennie obserwuj\u0119, jak spo\u0142ecze\u0144stwo traktuje osoby z oty\u0142o\u015bci\u0105 i powi\u0105zanymi chorobami kardiometabolicznymi. Widzimy g\u0142uch\u0105 cisz\u0119 polityczn\u0105 i obawy wok\u00f3\u0142 jednego z najwi\u0119kszych wyzwa\u0144 zdrowotnych naszych czas\u00f3w. Zbyt cz\u0119sto z\u0142o\u017cone stany biologiczne sprowadzane s\u0105 do uproszczonych narracji o \u201czapobieganiu\u201d i indywidualnych wyborach stylu \u017cycia.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">To w\u0142a\u015bnie ta g\u0142\u0119boka niesprawiedliwo\u015b\u0107, codzienne pi\u0119tno i fragmentaryczne \u015bcie\u017cki pacjent\u00f3w s\u0105 tym, z czym teraz bezpo\u015brednio si\u0119 konfrontujemy. Jak podkre\u015blili\u015bmy podczas naszego sympozjum, pacjenci posiadaj\u0105 kluczowe do\u015bwiadczenie, kt\u00f3re musi aktywnie zarz\u0105dza\u0107 ryzykiem w systemach opieki zdrowotnej, zamiast by\u0107 jedynie emotywnymi anegdotami.<\/p>\n\n\n\n<div class=\"wp-block-group is-horizontal is-nowrap is-layout-flex wp-container-core-group-is-layout-68a6192b wp-block-group-is-layout-flex\">\n<p class=\"wp-block-paragraph\"><em>\u017bycie z przewlek\u0142\u0105 chorob\u0105 to znacznie wi\u0119cej ni\u017c przyjmowanie lek\u00f3w \u2013 to codzienne, ludzkie do\u015bwiadczenie wymagaj\u0105ce g\u0142\u0119bokiego zrozumienia, dost\u0119pnych narz\u0119dzi i gwarancji, \u017ce g\u0142os pacjenta jest faktycznie s\u0142yszany.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, reprezentuj\u0105c ECPO jako Lider Pacjenta w CarePath<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"510\" height=\"510\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg?strip=all\" alt=\"A woman with straight black hair, glasses, and bright pink lipstick smiles in a corridor. She is wearing a floral-patterned top and green earrings.\" class=\"wp-image-971\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg 510w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff--480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 510px, 100vw\" \/><\/figure>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Trzy kluczowe lekcje z Istambu\u0142u<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Wnioski z ECO 2026 i dyskusja prowadz\u0105ca nasz\u0105 sesj\u0119 \u00abOd Wk\u0142adu do Wp\u0142ywu\u00bb podkre\u015blaj\u0105 trzy kluczowe zasady, kt\u00f3re wyznaczaj\u0105 drog\u0119 naprz\u00f3d dla europejskiej opieki zdrowotnej:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Z\u0142o\u017cona rzeczywisto\u015b\u0107 biologiczna:<\/strong> Oty\u0142o\u015b\u0107 jest w pe\u0142ni uznawana za przewlek\u0142\u0105, nawracaj\u0105c\u0105 chorob\u0119, kt\u00f3ra wymaga d\u0142ugoterminowego, medycznego i holistycznego wsparcia w czasie. Musimy trwale odej\u015b\u0107 od obwiniania jednostek na rzecz rozwi\u0105za\u0144 strukturalnych.<\/li>\n\n\n\n<li><strong>Silne powi\u0105zania zdrowotne<\/strong>Zdrowie metaboliczne i sercowo-naczyniowe s\u0105 ze sob\u0105 g\u0142\u0119boko powi\u0105zane. Oty\u0142o\u015b\u0107 rzadko wyst\u0119puje w izolacji; jest \u015bci\u015ble powi\u0105zana z rozwojem cukrzycy typu 2 i chor\u00f3b sercowo-naczyniowych. Wymaga to zintegrowanych \u015bcie\u017cek opieki zdrowotnej, a nie izolowanych interwencji.<\/li>\n\n\n\n<li><strong>Ci\u0105g\u0142o\u015b\u0107 opieki<\/strong>Chocia\u017c nowoczesne metody leczenia oferuj\u0105 prze\u0142omowe nowe mo\u017cliwo\u015bci, interwencje kliniczne same w sobie nie rozwi\u0105\u017c\u0105 wszystkiego. Piln\u0105 potrzeb\u0105 jest tworzenie zr\u00f3wnowa\u017conych \u015bcie\u017cek opieki zdrowotnej i \u015brodowisk wspieraj\u0105cych, kt\u00f3re umo\u017cliwiaj\u0105 d\u0142ugoterminow\u0105 ci\u0105g\u0142o\u015b\u0107 opieki w codziennym \u017cyciu.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">CarePath: Dopasowanie mapy do terenu<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">W \u015brodowisku akademickim i badaniach medycznych cz\u0119sto tworzy si\u0119 pi\u0119kne mapy. Ale dla mnie praca projektowa nie polega na teoretycznych modelach; chodzi o w\u0142\u0105czenie rzeczywistego terenu, po kt\u00f3rym poruszaj\u0105 si\u0119 pacjenci, bezpo\u015brednio do system\u00f3w badawczych i opieki zdrowotnej. <strong>Mapa musi by\u0107 zgodna z terenem<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">To w\u0142a\u015bnie luk\u0119 CarePath ma na celu wype\u0142ni\u0107. Za\u0142o\u017cona przez <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Inicjatywa Zdrowia Innowacyjnego (IHI)<\/a>, Nasz konsorcjum opracowuje elastyczny, skoncentrowany na osobie, cyfrowy zestaw narz\u0119dzi typu \u201cplug-and-play\u201d. Projekt ma na celu umo\u017cliwienie jednostkom samodzielnego kierowania swoj\u0105 \u015bcie\u017ck\u0105 zdrowotn\u0105 na w\u0142asnych warunkach.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Przechodzimy teraz do kolejnej fazy projektu, w kt\u00f3rej badania pilota\u017cowe zostan\u0105 wdro\u017cone w ca\u0142ej Europie. Zebrane do\u015bwiadczenia, wiedza fach.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Zdrowie to co\u015b wi\u0119cej ni\u017c tylko waga. Reprezentuj\u0105c ECPO jako pacjent-lider, b\u0119d\u0119 nadal walczy\u0107 o podej\u015bcie oparte na dowodach, gdzie do\u015bwiadczenie \u017cyciowe jest traktowane jako prawdziwa wiedza ekspercka \u2013 zapewniaj\u0105c, \u017ce pacjenci b\u0119d\u0105 aktywnymi mened\u017cerami ryzyka, kt\u00f3rzy kieruj\u0105 tworzeniem narz\u0119dzi.<\/p>","protected":false},"excerpt":{"rendered":"<p>Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. The [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":969,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"<!-- wp:heading -->\n<h2 class=\"wp-block-heading\">Aligning the Map with the Terrain After ECO 2026<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><em>Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO, reflects on the congress discussions around obesity, integrated care and patient engagement - and what they mean for the CarePath project as it moves towards its pilot phase.<\/em><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>The way we understand, discuss, and treat complex health conditions is shifting.<\/strong> The European Congress on Obesity (#ECO2026) in Istanbul has just concluded. Discussions among healthcare professionals, researchers, and patient organizations left no room for doubt: healthcare systems must stop treating chronic conditions in a fragmented, piecemeal manner.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This shift was a core focus at <strong>ECPO\u2019s patient-centred symposium, \"Input to Impact \u2013 Patients as Risk Managers, not just storytellers\"<\/strong>. As part of the team at the European Coalition for People Living with Obesity (ECPO), which proudly holds the role of <strong>Patient Lead<\/strong> for the European CarePath project, we used this powerful session to highlight how CarePath actively addresses this transition.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I left Istanbul with a deep sense of both optimism and urgent impatience. It is high time we build bridges between top-tier medical research and the actual daily lives of the people it affects. In my role representing ECPO within the consortium, I am dedicated to ensuring this translation happens.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Political Apprehension and Everyday Stigma<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Through my work as leader of the Norwegian Association for People Living with Obesity (LFO) and my involvement with ECPO, I witness daily how individuals with obesity and related cardiometabolic conditions are met by society. We see a deafening political silence and apprehension surrounding one of the greatest public health challenges of our time. All too often, complex biological conditions are reduced to simplistic narratives about \"prevention\" and individual lifestyle choices.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It is this deep injustice, the everyday stigma, and the fragmented patient pathways that we are now directly confronting. As we emphasized during our symposium, patients possess critical expertise that must actively manage risks in healthcare systems, rather than just serving as emotional anecdotes.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><em>Living with a chronic condition is about far more than medication \u2013 it is a daily, human experience that requires deep understanding, accessible tools, and a guarantee that the patient\u2019s voice is actually heard.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, representing ECPO as Patient Lead in CarePath<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Three Key Lessons From Istanbul<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The insights from ECO 2026 and the dialogue driving our \u00abInput to Impact\u00bb session underscore three vital principles that define the path forward for European healthcare:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li><strong>A complex biological reality:<\/strong> Obesity is fully recognized as a chronic, relapsing disease that requires long-term, medical, and holistic support over time. We must move permanently away from individual blame toward structural solutions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Strong health interconnections<\/strong>: Metabolic and cardiovascular health are deeply linked. Obesity rarely occurs in isolation; it is closely intertwined with the development of type 2 diabetes and cardiovascular disease. This demands unified healthcare pathways, not isolated interventions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Continuity of care<\/strong>: While modern medical treatments offer ground-breaking new opportunities, clinical interventions alone cannot solve everything. The pressing need forward is creating sustainable healthcare pathways and supportive environments that enable long-term continuity of care in daily life.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">CarePath: Aligning the Map with the Terrain<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In academia and medical research, beautiful maps are often drawn. But for me, project work is not about theoretical models; it is about bringing the real terrain that patients navigate directly into research and healthcare systems. <strong>The map must align with the terrain<\/strong>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This is exactly the gap CarePath aims to bridge. Foundedby the <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Innovative Health Initiative (IHI)<\/a>, our consortium is developing a flexible, person-centered, digital \"plug-and-play\" toolkit. The project aims to empower individuals to navigate their health journey on their own terms.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>We are now moving into the next phase of the project, where pilot studies will be rolled out across Europe. The experiences, expertise, and invaluable insights shared by patient organizations in Istanbul\u2014and cemented during our own ECPO symposium\u2014will form the very foundation of this testing phase.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Health is about so much more than weight. Representing ECPO as the Patient Lead, I will continue to fight for an evidence-based approach where lived experience is treated as true expertise\u2014ensuring patients act as active risk managers driving the tools we create.<\/p>\n<!-- \/wp:paragraph -->","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-957","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-carepath"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carepath-ihi.eu\/pl\/the-patients-voice-in-carepath\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath\" \/>\n<meta property=\"og:description\" content=\"Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. 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