{"id":957,"date":"2026-07-07T18:33:02","date_gmt":"2026-07-07T16:33:02","guid":{"rendered":"https:\/\/carepath-ihi.eu\/?p=957"},"modified":"2026-07-08T12:03:22","modified_gmt":"2026-07-08T10:03:22","slug":"the-patients-voice-in-carepath","status":"publish","type":"post","link":"http:\/\/carepath-ihi.eu\/sv\/the-patients-voice-in-carepath\/","title":{"rendered":"Patientens r\u00f6st i CarePath"},"content":{"rendered":"<h2 class=\"wp-block-heading\">Att linjera kartan med terr\u00e4ngen efter ECO 2026<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Efter ECO 2026 reflekterar CarePaths partner Mari-Mette Graff, som representerar European Coalition for People Living with Obesity (ECPO), \u00f6ver kongressens diskussioner kring fetma, integrerad v\u00e5rd och patientengagemang \u2013 och vad de inneb\u00e4r f\u00f6r CarePath-projektet i takt med att det n\u00e4rmar sig sin pilotfas.<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>S\u00e4ttet vi f\u00f6rst\u00e5r, diskuterar och behandlar komplexa h\u00e4lsotillst\u00e5nd h\u00e5ller p\u00e5 att f\u00f6r\u00e4ndras.<\/strong> Den europeiska kongressen om fetma (#ECO2026) i Istanbul har just avslutats. Diskussionerna mellan v\u00e5rdpersonal, forskare och patientorganisationer l\u00e4mnade inget utrymme f\u00f6r tvivel: h\u00e4lso- och sjukv\u00e5rdssystemen m\u00e5ste sluta behandla kroniska sjukdomar p\u00e5 ett fragmenterat och splittrat s\u00e4tt.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg?strip=all\" alt=\"A woman presents the EU Project CarePath at the 33rd European Congress on Obesity; an empty panel with five chairs and microphones is in the foreground.\" class=\"wp-image-969\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-1024x683.jpeg 1024w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-980x653.jpeg 980w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/CarePath-ECO-2026-480x320.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Denna skiftning var ett huvudfokus vid <strong>ECPO:s patientcentrerade symposium, \u201cInput till genomslag \u2013 Patienter som riskhanterare, inte bara ber\u00e4ttare\u201d.\u201d<\/strong>. Som en del av teamet p\u00e5 European Coalition for People Living with Obesity (ECPO), som stolt innehar rollen som <strong>Patientansvarig<\/strong> f\u00f6r European CarePath-projektet anv\u00e4nde vi denna kraftfulla session f\u00f6r att belysa hur CarePath aktivt adresserar denna \u00f6verg\u00e5ng.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Jag l\u00e4mnade Istanbul med en djup k\u00e4nsla av b\u00e5de optimism och br\u00e5dskande ot\u00e5lighet. Det \u00e4r h\u00f6g tid att vi bygger broar mellan medicinsk toppforskning och det dagliga liv som de m\u00e4nniskor det p\u00e5verkar lever. I min roll som representant f\u00f6r ECPO inom konsortiet \u00e4r jag dedikerad till att s\u00e4kerst\u00e4lla att denna \u00f6vers\u00e4ttning sker.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Politisk oro och vardagsstigma<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Genom mitt arbete som ledare f\u00f6r Norska f\u00f6reningen f\u00f6r personer med fetma (LFO) och mitt engagemang i ECPO ser jag dagligen hur individer med fetma och relaterade kardiometabola tillst\u00e5nd bem\u00f6ts av samh\u00e4llet. Vi ser en \u00f6ronbed\u00f6vande politisk tystnad och oro kring en av v\u00e5r tids st\u00f6rsta folkh\u00e4lsoutmaningar. Alltf\u00f6r ofta reduceras komplexa biologiska tillst\u00e5nd till f\u00f6renklade ber\u00e4ttelser om \u201cprevention\u201d och individuella livsstilsval.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Det \u00e4r denna djupt rotade or\u00e4ttvisa, den vardagliga stigmatiseringen och de fragmenterade patientv\u00e4garna som vi nu direkt konfronterar. Som vi betonade under v\u00e5rt symposium besitter patienter kritisk expertis som m\u00e5ste hantera risker i v\u00e5rden, snarare \u00e4n att enbart fungera som k\u00e4nslom\u00e4ssiga anekdoter.<\/p>\n\n\n\n<div class=\"wp-block-group is-horizontal is-nowrap is-layout-flex wp-container-core-group-is-layout-68a6192b wp-block-group-is-layout-flex\">\n<p class=\"wp-block-paragraph\"><em>Att leva med ett kroniskt tillst\u00e5nd handlar om l\u00e5ngt mer \u00e4n medicinering \u2013 det \u00e4r en daglig, m\u00e4nsklig upplevelse som kr\u00e4ver djup f\u00f6rst\u00e5else, tillg\u00e4ngliga verktyg och en garanti f\u00f6r att patientens r\u00f6st faktiskt h\u00f6rs.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, representerar ECPO som Patientledare i CarePath<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"510\" height=\"510\" src=\"http:\/\/cdn.carepath-ihi.eu\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg?strip=all\" alt=\"A woman with straight black hair, glasses, and bright pink lipstick smiles in a corridor. She is wearing a floral-patterned top and green earrings.\" class=\"wp-image-971\" srcset=\"https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff-.jpg 510w, https:\/\/34fa21a6b61f60a96819.b-cdn.net\/wp-content\/uploads\/2026\/07\/Mari-Mette-Graff--480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 510px, 100vw\" \/><\/figure>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Tre viktiga l\u00e4rdomar fr\u00e5n Istanbul<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Insikterna fr\u00e5n ECO 2026 och dialogen som drivit v\u00e5r \u00abInput to Impact\u00bb-session understryker tre vitala principer som definierar v\u00e4gen fram\u00e5t f\u00f6r europeisk h\u00e4lso- och sjukv\u00e5rd:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>En komplex biologisk verklighet:<\/strong> Fetma erk\u00e4nns fullt ut som en kronisk, \u00e5terkommande sjukdom som kr\u00e4ver l\u00e5ngsiktigt, medicinskt och holistiskt st\u00f6d \u00f6ver tid. Vi m\u00e5ste permanent g\u00e5 bort fr\u00e5n individens skuld mot strukturella l\u00f6sningar.<\/li>\n\n\n\n<li><strong>Starka h\u00e4lsokopplingar<\/strong>Metabolisk och kardiovaskul\u00e4r h\u00e4lsa \u00e4r djupt sammanl\u00e4nkade. Fetma uppst\u00e5r s\u00e4llan isolerat; den \u00e4r t\u00e4tt sammankopplad med utvecklingen av typ 2-diabetes och hj\u00e4rt-k\u00e4rlsjukdom. Detta kr\u00e4ver enhetliga v\u00e5rdv\u00e4gar, inte isolerade insatser.<\/li>\n\n\n\n<li><strong>Kontinuitet i v\u00e5rden<\/strong>: Medan moderna medicinska behandlingar erbjuder banbrytande nya m\u00f6jligheter, kan kliniska insatser ensamma inte l\u00f6sa allt. Det akuta behovet fram\u00e5t \u00e4r att skapa h\u00e5llbara v\u00e5rdv\u00e4gar och st\u00f6djande milj\u00f6er som m\u00f6jligg\u00f6r l\u00e5ngsiktig kontinuitet i v\u00e5rden i vardagen.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">CarePath: Anpassa kartan till terr\u00e4ngen<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Inom akademi och medicinsk forskning ritas ofta vackra kartor. Men f\u00f6r mig handlar projektarbete inte om teoretiska modeller; det handlar om att direkt integrera den verkliga terr\u00e4ng som patienter navigerar i forskning och h\u00e4lso- och sjukv\u00e5rdssystem. <strong>Kartans m\u00e5ste \u00f6verensst\u00e4mma med terr\u00e4ngen<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Det \u00e4r precis den klyfta som CarePath syftar till att \u00f6verbrygga. Grundat av <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Innovativ H\u00e4lsoinitiativ (IHI)<\/a>, v\u00e5rt konsortium utvecklar ett flexibelt, personcentrerat, digitalt \u201cplug-and-play\u201d-verktyg. Projektet syftar till att ge individer m\u00f6jlighet att navigera sin h\u00e4lsresa p\u00e5 egna villkor.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Vi g\u00e5r nu in i projektets n\u00e4sta fas, d\u00e4r pilotstudier kommer att rullas ut \u00f6ver hela Europa. De erfarenheter, expertkunskaper och ov\u00e4rderliga insikter som patientorganisationerna delade med sig av i Istanbul \u2013 och som cementerades under v\u00e5rt eget ECPO-symposium \u2013 kommer att utg\u00f6ra sj\u00e4lva grunden f\u00f6r denna testfas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">H\u00e4lsa handlar om s\u00e5 mycket mer \u00e4n vikt. Som patientf\u00f6retr\u00e4dare f\u00f6r ECPO kommer jag att forts\u00e4tta k\u00e4mpa f\u00f6r ett evidensbaserat syns\u00e4tt d\u00e4r levd erfarenhet betraktas som sann expertis \u2013 och se till att patienter agerar som aktiva riskhanterare som driver de verktyg vi skapar.<\/p>","protected":false},"excerpt":{"rendered":"<p>Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. The [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":969,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"<!-- wp:heading -->\n<h2 class=\"wp-block-heading\">Aligning the Map with the Terrain After ECO 2026<\/h2>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p><em>Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO, reflects on the congress discussions around obesity, integrated care and patient engagement - and what they mean for the CarePath project as it moves towards its pilot phase.<\/em><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><strong>The way we understand, discuss, and treat complex health conditions is shifting.<\/strong> The European Congress on Obesity (#ECO2026) in Istanbul has just concluded. Discussions among healthcare professionals, researchers, and patient organizations left no room for doubt: healthcare systems must stop treating chronic conditions in a fragmented, piecemeal manner.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This shift was a core focus at <strong>ECPO\u2019s patient-centred symposium, \"Input to Impact \u2013 Patients as Risk Managers, not just storytellers\"<\/strong>. As part of the team at the European Coalition for People Living with Obesity (ECPO), which proudly holds the role of <strong>Patient Lead<\/strong> for the European CarePath project, we used this powerful session to highlight how CarePath actively addresses this transition.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>I left Istanbul with a deep sense of both optimism and urgent impatience. It is high time we build bridges between top-tier medical research and the actual daily lives of the people it affects. In my role representing ECPO within the consortium, I am dedicated to ensuring this translation happens.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Political Apprehension and Everyday Stigma<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>Through my work as leader of the Norwegian Association for People Living with Obesity (LFO) and my involvement with ECPO, I witness daily how individuals with obesity and related cardiometabolic conditions are met by society. We see a deafening political silence and apprehension surrounding one of the greatest public health challenges of our time. All too often, complex biological conditions are reduced to simplistic narratives about \"prevention\" and individual lifestyle choices.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>It is this deep injustice, the everyday stigma, and the fragmented patient pathways that we are now directly confronting. As we emphasized during our symposium, patients possess critical expertise that must actively manage risks in healthcare systems, rather than just serving as emotional anecdotes.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><em>Living with a chronic condition is about far more than medication \u2013 it is a daily, human experience that requires deep understanding, accessible tools, and a guarantee that the patient\u2019s voice is actually heard.<\/em><br>\u2014 <strong>Mari-Mette Graff<\/strong>, representing ECPO as Patient Lead in CarePath<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">Three Key Lessons From Istanbul<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>The insights from ECO 2026 and the dialogue driving our \u00abInput to Impact\u00bb session underscore three vital principles that define the path forward for European healthcare:<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:list -->\n<ul class=\"wp-block-list\"><!-- wp:list-item -->\n<li><strong>A complex biological reality:<\/strong> Obesity is fully recognized as a chronic, relapsing disease that requires long-term, medical, and holistic support over time. We must move permanently away from individual blame toward structural solutions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Strong health interconnections<\/strong>: Metabolic and cardiovascular health are deeply linked. Obesity rarely occurs in isolation; it is closely intertwined with the development of type 2 diabetes and cardiovascular disease. This demands unified healthcare pathways, not isolated interventions.<\/li>\n<!-- \/wp:list-item -->\n\n<!-- wp:list-item -->\n<li><strong>Continuity of care<\/strong>: While modern medical treatments offer ground-breaking new opportunities, clinical interventions alone cannot solve everything. The pressing need forward is creating sustainable healthcare pathways and supportive environments that enable long-term continuity of care in daily life.<\/li>\n<!-- \/wp:list-item --><\/ul>\n<!-- \/wp:list -->\n\n<!-- wp:heading {\"level\":3} -->\n<h3 class=\"wp-block-heading\">CarePath: Aligning the Map with the Terrain<\/h3>\n<!-- \/wp:heading -->\n\n<!-- wp:paragraph -->\n<p>In academia and medical research, beautiful maps are often drawn. But for me, project work is not about theoretical models; it is about bringing the real terrain that patients navigate directly into research and healthcare systems. <strong>The map must align with the terrain<\/strong>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>This is exactly the gap CarePath aims to bridge. Foundedby the <a href=\"https:\/\/www.ihi.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Innovative Health Initiative (IHI)<\/a>, our consortium is developing a flexible, person-centered, digital \"plug-and-play\" toolkit. The project aims to empower individuals to navigate their health journey on their own terms.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>We are now moving into the next phase of the project, where pilot studies will be rolled out across Europe. The experiences, expertise, and invaluable insights shared by patient organizations in Istanbul\u2014and cemented during our own ECPO symposium\u2014will form the very foundation of this testing phase.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Health is about so much more than weight. Representing ECPO as the Patient Lead, I will continue to fight for an evidence-based approach where lived experience is treated as true expertise\u2014ensuring patients act as active risk managers driving the tools we create.<\/p>\n<!-- \/wp:paragraph -->","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-957","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-carepath"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carepath-ihi.eu\/sv\/the-patients-voice-in-carepath\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The\u00a0Patient\u2019s\u00a0Voice in\u00a0CarePath - CarePath\" \/>\n<meta property=\"og:description\" content=\"Aligning the Map with the Terrain After ECO 2026 Following ECO 2026, CarePath partner Mari-Mette Graff, representing the European Coalition for People Living with Obesity (ECPO) reflects on the congress discussions around obesity, integrated care and patient engagement &#8211; and what they mean for the CarePath project as it moves towards its pilot phase. 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